Partnership in care transitions : a systems framework for improving relationships with parents of infants with retinopathy of prematurity in Calgary, Alberta

Abstract

Retinopathy of prematurity (ROP) is a disease that affects premature infants. This inquiry examined how clinical and operational leadership within the Calgary zone of Alberta Health Services could partner with parents of infants with ROP to create a smooth transition from inpatient to outpatient services. Within this inquiry, which applied an action research engagement methodology, multidisciplinary clinicians and parents participated in an electronic survey and interviews, respectively, while adhering to all Royal Roads University requirements. Key findings included four overarching themes of a clinician and parent relationship, a holistic approach, continuity of care, and parent resources. These findings informed the development of a systems framework for transitions in care and organizational recommendations. The five recommendations are to develop parent resources, provide continuing education for clinicians, ensure family centered care is a foundational philosophy in care delivery, designate a permanent ROP coordinator position, and establish an ROP multidisciplinary advisory council.